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Title:      THE RISE OF PATIENT 3.0: THE IMPACT OF SOCIAL MEDIA
Author(s):      Jane Clemensen, Dorthe Boe Danbjørg, Mette Damkjær Syse, Ian Robert Coxon
ISBN:      978-989-8533-53-1
Editors:      Mário Macedo
Year:      2016
Edition:      Single
Keywords:      Health 3.0; Patient 3.0; Facebook; social media; hip dysplasia, patient empowerment
Type:      Full Paper
First Page:      139
Last Page:      148
Language:      English
Cover:      cover          
Full Contents:      click to dowload Download
Paper Abstract:      Social media, particularly Facebook (FB), is a new way for patients to find peer patients. By investigating communications within a patient generated FB group over a one year period we looked for evidence of the existence of Patient 3.01. The indicators for these kinds of activities were where patients gained a higher level of reflection through sharing and combining knowledge, and were able to use the knowledge gained for taking responsibility and action towards their own health situation. The aim of the research described in this paper was to investigate the communication between patients in a Facebook group looking for signs of patient 3.0 in the context of health 3.0 (Gagnon, 2012). Qualitative content analysis was conducted on transcripts of postings on the Facebook group site from the period January 2010 to January 2011. These were categorized into themes based on the intentions indicated in patient updates and comments on the group site. Additionally, a focus group interview consisting of 10 participants was conducted, transcribed and analyzed. Patients in the FB group made the most of each other's previous experiences by sharing their knowledge. This sharing empowered patients to address issues they had with both their health care professionals and the health system in general. The material indicates that this group of patients exhibit signs of being what has been described as “Patient 3.0” (Ibid). Their experiences also showcase collisions with the health care system and their expectations of it. Patients did not feel that they were being dealt with from a holistic point of view, and that the FB group was able to compensate for their unmet needs. Being an 'expert', will in the future, mean a lot more than knowing about the disease and treating symptoms. It will require a different approach containing the ability to work with health issues from a holistic point of view. Therefore the roles between patients and the health care providers will change. How these changes will come forward we do not know, but this paper foreshadows what might be expected.
   

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